Topic

rare disease

9 articles

Yas Clinic and ADSCC treat 2-year-old with rare immune disorder in Abu Dhabi

A 2-year-old with Hyper-IgM Syndrome received an urgent bone marrow transplant in Abu Dhabi. The story matters for referral, insurance and family guidance.

24 Sept 2026 · 3 min read

Yas Clinic and ADSCC treat 2-year-old with rare immune disorder in Abu Dhabi

Mohammed bin Rashid funds Dh8.8m SMA treatment at Al Jalila, testing rare-disease pathways

A Jordanian toddler’s SMA case puts Dubai’s high-cost paediatric care pathway in focus. Clinics, insurers and families need faster referral checks.

23 Aug 2026 · 3 min read

Mohammed bin Rashid funds Dh8.8m SMA treatment at Al Jalila, testing rare-disease pathways

Sheikh Mohammed funds AED 8.8m SMA treatment for 16-month-old Jordanian girl

Katia Abu Al-Saud will be treated in Dubai. The case shows how rare-disease access still depends on funding pathways.

23 Aug 2026 · 3 min read

Sheikh Mohammed funds AED 8.8m SMA treatment for 16-month-old Jordanian girl

Mohammed bin Rashid’s AED 8.8m SMA case puts rare-disease funding back on UAE agenda

Sheikh Mohammed will fund a child’s AED 8.8m SMA treatment in Dubai. UAE clinics and insurers should review rare-disease referral and funding pathways.

22 Aug 2026 · 3 min read

Mohammed bin Rashid’s AED 8.8m SMA case puts rare-disease funding back on UAE agenda

Breaking

$2.4m SMA case at Al Jalila puts rare-disease access back on UAE clinics' agenda

Sheikh Mohammed will cover treatment for a Jordanian toddler with SMA. UAE clinics and insurers should review rare-disease referral, consent and funding workflows.

22 Aug 2026 · 3 min read

$2.4m SMA case at Al Jalila puts rare-disease access back on UAE clinics' agenda

Sheikh Mohammed funds Katia's AED 8.8m SMA treatment at Al Jalila

Sheikh Mohammed will cover Katia's AED 8.8m SMA treatment in Dubai. Clinics and insurers should treat the case as a rare-disease access signal.

21 Aug 2026 · 3 min read

Sheikh Mohammed funds Katia's AED 8.8m SMA treatment at Al Jalila

Finance & Investment

Burjeel Abu Dhabi’s 1-in-1 million AOSD case tests rare-fever pathways

Burjeel Hospital Abu Dhabi diagnosed Adult-Onset Still's Disease in a 34-year-old patient after more than two weeks of fever, a case with direct lessons for rare-fever escalation.

20 Jun 2026 · 3 min read

Burjeel Abu Dhabi’s 1-in-1 million AOSD case tests rare-fever pathways

Finance & Investment

Burjeel's 6,900 ng/mL AOSD case exposes rare-disease pathway gaps in Abu Dhabi

Burjeel Hospital Abu Dhabi diagnosed a 34-year-old AOSD patient after more than 14 days of fever, with symptoms easing within 48 hours of steroid therapy.

19 Jun 2026 · 3 min read

Burjeel's 6,900 ng/mL AOSD case exposes rare-disease pathway gaps in Abu Dhabi

Regulatory & PolicyBreaking

Abu Dhabi opens UAE's first gene therapy trial for MerTK-linked retinal blindness

The Department of Health Abu Dhabi has initiated the UAE's first gene therapy trial, targeting MerTK-related retinitis pigmentosa, a rare inherited condition causing progressive blindness. The trial confirms a working regulatory pathway for advanced therapies in the emirate.

28 Mar 2026 · 3 min read

Abu Dhabi opens UAE's first gene therapy trial for MerTK-linked retinal blindness