What to expect from mastectomy for Paget disease of the breast

Short answer
Mastectomy for Paget disease removes the affected breast tissue and is followed by wound care, pathology review, and tailored follow-up.
This answers one question. It is not a diagnosis and does not replace an assessment by a licensed doctor.
At a glance
- Area involved
- The nipple area, with possible disease elsewhere in the breast
- Follow-up
- Wound review, pathology discussion, and an individual treatment plan
Understanding the surgery
Paget disease affects the nipple area and may occur with changes elsewhere in the breast. Your surgeon will discuss whether mastectomy is appropriate based on examination, imaging, and biopsy information. The operation can remove the breast, nipple, and areola; lymph nodes may also be assessed when indicated. Reconstruction may be discussed before surgery or at a later stage.
The hospital team usually explains anaesthesia, pain control, dressings, and drains. The chest can feel sore, tight, bruised, numb, or unusually sensitive. Pathology examines the removed tissue and helps guide decisions about further treatment.
How to prepare and heal
Bring a complete medicine list and mention blood-thinning medicines, allergies, and health conditions. Plan transport and practical support for the first days at home. Follow the team’s instructions for bathing, dressing changes, drain measurement, prescribed medicines, and arm exercises. Avoid rubbing the incision and postpone demanding activity until cleared.
Keep appointments for wound review and pathology results. If reconstruction is being considered, ask how it affects timing, recovery, and future breast or chest checks.
When to seek medical help
Report fever, spreading redness, increasing warmth, pus-like fluid, wound opening, rapidly increasing swelling, uncontrolled pain, or a drain that suddenly changes. Get emergency help for heavy bleeding, severe breathing difficulty, chest pain, or collapse.
Questions for your doctor
Why is mastectomy recommended for my Paget disease? Will lymph nodes be assessed? What reconstruction choices are available? How will the nipple-area symptoms be monitored? When should I expect pathology results and the next treatment discussion?
Questions people ask
Is mastectomy always needed for Paget disease?
Not always. The recommended operation depends on the extent and location of disease and findings from assessment.
What happens to the removed tissue?
A pathology team examines it to confirm the diagnosis, assess its extent, and help plan any further care.
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A factual listing drawn from the DHA, DOH and MOHAP licence registers. It is not a referral, an endorsement, or advice that any of these providers is right for you.
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