How common is delayed puberty in Turner syndrome?

Turner syndrome can affect the ovaries, which may not produce enough hormones for puberty to begin or progress in the expected way. Signs can include absent breast development, no menstrual periods, or puberty that starts and then does not continue. The timing and degree vary from person to person. Delayed puberty can have other causes, so the symptom alone does not establish Turner syndrome.

Arrange an assessment with a paediatrician, adolescent-medicine clinician, or endocrinologist. They may review growth and development, ask about family history, and consider hormone tests, chromosome testing, or imaging based on the findings. If Turner syndrome is known, coordinated care can address pubertal development, bone health, and menstrual goals. Bring previous growth charts and test results if available.

Seek an appointment when expected pubertal changes are absent, stop progressing, or cause distress. Earlier review is useful when growth is also unusual, periods have not started, or there are known features of Turner syndrome. Seek urgent help for severe headache, vision change, fainting, chest pain, or sudden severe abdominal pain; these symptoms need prompt assessment for causes beyond delayed puberty.

Ask which findings support Turner syndrome, which tests are appropriate, and whether hormone treatment could help start or continue puberty. You can also ask how care will monitor bone strength, growth, heart health, and menstrual development over time.